Hello I hope everyone is having a goof Friday. If you have been reading my blog you know by know that the bulk of my blog is about my and all that our family has gone threw in 2015 and 2016. I wanted to do this so that I could help someone who may have a son or a daughter who may be going threw what I am. We all need community and the would of Facebook ,Instagram &Twitter would have you thinking you are all alone because everyone if pretty, fly and fabulous. On Facebook no one tells you the real story of the life or raising teenager. Well stick with me and I tell you the truth and make plain just how I like my drinks straight no chaser. I have decided that Lupus will not kill me and neither will my kids stressing me out. To the point that my heart explodes or my blood pressure is so high that I have stroke,
I have not worked in 4 years and I have wanted to always do more that be at home and be sick. But it seems that my health was never in a place that would allow me to do anything. I became consumed with Lupus (SLE) that it was in almost every conversation. I was either going to the Doctor or coming home from the Doctor all the time. My hair had started to fall out and with the steroids I had gained so much weight. I was not comfortable in my own skin. And since the kinds of Lupus that I have attacks your major organs my heart was next on the list. 39 years old in diastolic heart failure. The scared the shit out of me because my Father who died 2 months before I was diagnosed with Lupus suffered from CFH
So last week I decided that I would do what I love and see if I could make some extra money at the same time. I had never been a cook and definitely not a baker but when my son's Godmother taught me how to cook she gave me a recipe for a pound cake so that I could get my feet wet. That was 15 years ago and I make with ease some changes have been made to it so that it is the way that I like cake. So my family has now become to except my cakes at holidays and family functions. I have also over the years taught myself a few other desert recipes and while I am not fancy I do take pride in my baking. So I decided to try to sell my deserts and see if I could at best make some pocket change so that I could do somethings with kids this summer. I was under the mindset that since it was something that I loved that I would be able to relax and enjoy it.
Kimskakery has done well in the 1st week and I am very proud but I woke this morning and I could not walk my legs and my back hurt so back that the pain pills that I take are not helping. I was in tears and I knew that this meant that I had done to much because this damn disease will not allow you have a life or make plans. I am so sad that once again Lupus wins and I lose. I wanted to go to the pool and then maybe go have dinner with some friends. But instead I have been in the bed all day and when the pain was at its worse I just went to sleep. I never thought that this would be my life. I love my house and my kids sometimes I want to be normal. And it amazes me that someone would say to me that I was lazy who the hell wants this pain that the only time you don't hurt is when you are
sleep.
And the sad part is that there is no cure for Lupus and the funding is only less than a tenth of what Cancer research gets. So yes I am blessed to be alive but damn it I and almost 41 I want to have a life.
#Kimskakery #singlemomatwar
I have not worked in 4 years and I have wanted to always do more that be at home and be sick. But it seems that my health was never in a place that would allow me to do anything. I became consumed with Lupus (SLE) that it was in almost every conversation. I was either going to the Doctor or coming home from the Doctor all the time. My hair had started to fall out and with the steroids I had gained so much weight. I was not comfortable in my own skin. And since the kinds of Lupus that I have attacks your major organs my heart was next on the list. 39 years old in diastolic heart failure. The scared the shit out of me because my Father who died 2 months before I was diagnosed with Lupus suffered from CFH
So last week I decided that I would do what I love and see if I could make some extra money at the same time. I had never been a cook and definitely not a baker but when my son's Godmother taught me how to cook she gave me a recipe for a pound cake so that I could get my feet wet. That was 15 years ago and I make with ease some changes have been made to it so that it is the way that I like cake. So my family has now become to except my cakes at holidays and family functions. I have also over the years taught myself a few other desert recipes and while I am not fancy I do take pride in my baking. So I decided to try to sell my deserts and see if I could at best make some pocket change so that I could do somethings with kids this summer. I was under the mindset that since it was something that I loved that I would be able to relax and enjoy it.
Kimskakery has done well in the 1st week and I am very proud but I woke this morning and I could not walk my legs and my back hurt so back that the pain pills that I take are not helping. I was in tears and I knew that this meant that I had done to much because this damn disease will not allow you have a life or make plans. I am so sad that once again Lupus wins and I lose. I wanted to go to the pool and then maybe go have dinner with some friends. But instead I have been in the bed all day and when the pain was at its worse I just went to sleep. I never thought that this would be my life. I love my house and my kids sometimes I want to be normal. And it amazes me that someone would say to me that I was lazy who the hell wants this pain that the only time you don't hurt is when you are
sleep.
And the sad part is that there is no cure for Lupus and the funding is only less than a tenth of what Cancer research gets. So yes I am blessed to be alive but damn it I and almost 41 I want to have a life.
#Kimskakery #singlemomatwar
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